Who has scleroderma?
Scleroderma (sklair-oh-DUR-muh) is a group of rare diseases that involve the hardening and tightening of the skin and connective tissues. Scleroderma affects women more often than men and most commonly occurs between the ages of 30 and 50.
Who is most affected by scleroderma?
Gender: It’s much more common in women than men. As many as 80 percent of those diagnosed with scleroderma are women. Age: Most localized types of scleroderma show up before age 40, and systemic types of scleroderma are typically diagnosed between ages 30 and 50.
What percentage of the population has scleroderma?
3. Scleroderma affects about 300,000 people in the United States, about one in every thousand. The number of people affected worldwide is unknown, but the disease has been reported all across the globe.
What is End Stage scleroderma?
This type of scleroderma is typically accompanied by shortness of breath, a persistent cough, and the inability to perform routine physical activities. End-stage scleroderma often causes pulmonary fibrosis and/or pulmonary hypertension, both of which can be life-threatening.
How painful is scleroderma?
Some people with Scleroderma develop a painful condition called trigeminal neuralgia. This is caused by inflammation of the nerves that provide sensation to the face. The nerve inflammation causes pain. The intensity of pain isn’t constant.
Who are some famous people that have scleroderma?
Famous people who have Scleroderma. Bob Saget is a television host, actor and comedian. He is also a very vocal advocate for scleroderma, a role that started way back in 1989. Bob Saget is a television host, actor and comedian. He is also a very vocal advocate for scleroderma.
What do you need to know about scleroderma at Johns Hopkins?
: Johns Hopkins Scleroderma Center What is SCLERODERMA? Scleroderma is an autoimmune, rheumatic, and chronic disease that affects the body by hardening connective tissue. (“Connective tissue” is widespread. It adds strength to organs and other parts of the body.) Connective tissue is made of many kinds of proteins.
When does scleroderma first appear in a person?
Primary Raynaud’s typically first appears during one’s teens or early adulthood. People with scleroderma tend to develop it later in life and the intensity is A LOT more severe. Sometimes the skin can become so ischemic (poor circulation) that it can cause an ulcer.
How does a rheumatologist breakdown scleroderma?
This is how rheumatologists breakdown scleroderma: Basically, systemic sclerosis is when the disease affects the skin and internal organs and localized scleroderma is when it only involves the skin.
Famous people who have Scleroderma. Bob Saget is a television host, actor and comedian. He is also a very vocal advocate for scleroderma, a role that started way back in 1989. Bob Saget is a television host, actor and comedian. He is also a very vocal advocate for scleroderma.
This is how rheumatologists breakdown scleroderma: Basically, systemic sclerosis is when the disease affects the skin and internal organs and localized scleroderma is when it only involves the skin.
: Johns Hopkins Scleroderma Center What is SCLERODERMA? Scleroderma is an autoimmune, rheumatic, and chronic disease that affects the body by hardening connective tissue. (“Connective tissue” is widespread. It adds strength to organs and other parts of the body.) Connective tissue is made of many kinds of proteins.
Who is most at risk for systemic scleroderma?
Systemic scleroderma mostly strikes Caucasians in their 30s or 40s, and affects four times as many women as men. 6 Systemic scleroderma is characterized by the same thick skin patches as linear scleroderma along with other symptoms, the most common of which is Raynaud’s Phenomenon.