How does hemophilia affect your life?

How does hemophilia affect your life?

Hemophilia can result in: Bleeding within joints that can lead to chronic joint disease and pain. Bleeding in the head and sometimes in the brain which can cause long term problems, such as seizures and paralysis. Death can occur if the bleeding cannot be stopped or if it occurs in a vital organ such as the brain.

Can a child with hemophilia lead a normal life?

Key points about hemophilia in children Hemophilia is an inherited bleeding disorder. The most common symptom of hemophilia is increased, uncontrollable bleeding. Giving factor VIII or IX can allow a child with hemophilia to lead a near normal lifestyle.

What happens to your body when you have hemophilia?

Hemarthrosis (bleeding into a joint) can cause pain, immobility, and deformity if not treated. This is the most common site of complications due to hemophilia bleeding. These joint bleeds can lead to chronic, painful, arthritis, deformity, and crippling with repeated occurrences. Bleeding into the muscles.

What causes bleeding in the brain in children with hemophilia?

Bleeding from injury, or spontaneously in the brain, is the most common cause of death in children with hemophilia and the most serious bleeding complication. Bleeding in or around the brain can occur from even a small bump on the head or a fall.

What are the treatment options for a child with hemophilia?

Treatment may include: Bleeding in the joint may need surgery or immobilization. Blood transfusions may be needed if major blood loss has occurred. Self-infused factor VIII or IX can allow a child with hemophilia to lead a near normal lifestyle.

What is the risk of hemophilia for her children?

Each female hemophilia carrier has a 50% chance of having a daughter who carries the hemophilia gene and a 50% chance of having a son who has hemophilia. (If the X chromosome from the mother contains the faulty clotting gene, the son will have hemophilia.)

Does your child have hemophilia an or B?

Hemophilia A and B are present at birth and are usually inherited. This means that hemophilia runs in your child’s family. The gene is passed from a parent to the child. A woman may carry and pass the gene that causes hemophilia, but not have hemophilia.

Can hemophilia be detected in the child before birth?

In the best of cases, testing for hemophilia is planned before the baby’s delivery so that a sample of blood can be drawn from the umbilical cord (which connects the mother and baby before birth) immediately after birth and tested to determine the level of the clotting factors.

What are the signs of hemophilia?

The major signs of hemophilia are excessive bleeding and easy bruising. The extent of bleeding depends on how severe the disease is. Children with mild hemophilia may not show signs unless they experience excessive bleeding from a dental procedure, an accident or surgery.